Good evening everyone!
Today was a beautiful day. The weather was so nice that I got to go outside to walk. It felt really good to be out. I had the day off from clinic and we got laundry done. Seems like that is all we get done, but when you have to do linens every other day and then my clothes it takes a while.
Dad and Corinne left this evening after Rodney got here. It was good to spend time with my Dad and Corinne but it was nice to see Rodney too.
I think that graft vs host disease is coming on my left leg. It is like I have a suntan on my leg except for the place where they grafted skin last year. It just started today. It may be nothing but I have to let them know if there is anything different at any time. We want a mild case so we know that the marrow transplant is doing what it is suppose to be doing.
I hope that all of you had a fun and safe Halloween and second reminder to set your clocks back one hour on Sat. night before you go to bed.
Well, I have to get my pills together for tomorrow and then go to bed.
Have a wonderful weekend,
Love to all.
Gloria
Friday, October 31, 2008
Thursday, October 30, 2008
day 47 after transplant
Hey guys,
I know that this is early for me tonight but I want to get some other things done and then go to bed.I went to the clinic today at 10 and didn't get back to the hotel until 3 this afternoon.It was a long day. They really didn't do anything different today. I think that they may have been a little short staffed. I got the results back from my bone marrow biospy and they said that everything looked good. No sign of MDS. Praise the Lord! Things are going as scheduled. I do seem to be over this virus. There are still alot of people that have it. Thank the Lord that I only had a mild case of it compared to some of the others that I have seen in the clinic.
I do not have to go back to the clinic until Monday -- so I have the whole weekend off. That will be nice.
I can't believe that it is almost November. My time here is getting shorter and I will so excited about being back in B'water. I know that I will still have a long row to hoe then but at least I will be home.
Hey everybody, don't forget to turn your clocks back one hour on Saturday night or you will be late for church. Now it will get dark at 5 and that makes for a long night. It also means winter is just around the corner. I pray that it will not snow until after I get back to B'water because that could mess up my caregiver schedule.I will just take it one day at a time.
Thanks for your love, support and prayers for Rodney and me.
Gloria
I know that this is early for me tonight but I want to get some other things done and then go to bed.I went to the clinic today at 10 and didn't get back to the hotel until 3 this afternoon.It was a long day. They really didn't do anything different today. I think that they may have been a little short staffed. I got the results back from my bone marrow biospy and they said that everything looked good. No sign of MDS. Praise the Lord! Things are going as scheduled. I do seem to be over this virus. There are still alot of people that have it. Thank the Lord that I only had a mild case of it compared to some of the others that I have seen in the clinic.
I do not have to go back to the clinic until Monday -- so I have the whole weekend off. That will be nice.
I can't believe that it is almost November. My time here is getting shorter and I will so excited about being back in B'water. I know that I will still have a long row to hoe then but at least I will be home.
Hey everybody, don't forget to turn your clocks back one hour on Saturday night or you will be late for church. Now it will get dark at 5 and that makes for a long night. It also means winter is just around the corner. I pray that it will not snow until after I get back to B'water because that could mess up my caregiver schedule.I will just take it one day at a time.
Thanks for your love, support and prayers for Rodney and me.
Gloria
Wednesday, October 29, 2008
day 46 after transplant
Hi,
Long day today. My brother got up at 3 a.m. this morning to get ready for the airport and he left the hotel at 4 a.m. After telling him good-bye I went back to bed. The week with him went by really fast but I sure enjoyed the time we got to spend together. Thanks John for everything you did. My Dad and Corinne came in to be my caregivers until Friday when Rodney gets here.
They washed my linens off the bed and we ate lunch. Then we played a round of Mexican Train Dominos. I was tired so I laid down for a while. They fixed dinner and we watched a little TV. They had a new game they wanted to teach me how to play called Sheng-Hi Rummy. It was a card game and it was fun after I learned the rules.
I go to the clinic tomorrow at 10 and I hope that it won't be too long a visit.I am praying for good test results.
Thanks to everyone that continues to send cards. The front desk is amazed at the amount of mail that I get everyday. It sure is nice to hear from all of you.
Well, I have to go to bed.
God Bless all of You,
Love,
Gloria
Long day today. My brother got up at 3 a.m. this morning to get ready for the airport and he left the hotel at 4 a.m. After telling him good-bye I went back to bed. The week with him went by really fast but I sure enjoyed the time we got to spend together. Thanks John for everything you did. My Dad and Corinne came in to be my caregivers until Friday when Rodney gets here.
They washed my linens off the bed and we ate lunch. Then we played a round of Mexican Train Dominos. I was tired so I laid down for a while. They fixed dinner and we watched a little TV. They had a new game they wanted to teach me how to play called Sheng-Hi Rummy. It was a card game and it was fun after I learned the rules.
I go to the clinic tomorrow at 10 and I hope that it won't be too long a visit.I am praying for good test results.
Thanks to everyone that continues to send cards. The front desk is amazed at the amount of mail that I get everyday. It sure is nice to hear from all of you.
Well, I have to go to bed.
God Bless all of You,
Love,
Gloria
Tuesday, October 28, 2008
day 45 after transplant
Hello guys,
Today was very cool and windy. John cleaned the suite.I had to find some place to go. It was too cool to sit outside so I sat in John's car and read a book and even took a nap. Other then clean we really didn't do much because I didn't have to go to the clinic. I have tomorrow off also. It will be a short night because John is getting a wake up call at 2:45a.m. so he can shower and leave for the airport. His flight leaves at 6 a.m. I am so glad that I have the day off. John and I had an awesome week together. Can't believe that the week is already over. Dena, don't worry he was a very good caregiver. He moved all the furniture and cleaned behind everything.
Dad and Corinne came down this afternoon and will be here until Rodney gets here on Friday.
I am sorry to hear about Shirley's dad passing but I know that he is at peace and has no more pain. Shirley and Dennis I will keep you in my thoughts and prayers.
Good night guys,
God Bless all of You,
Gloria
Today was very cool and windy. John cleaned the suite.I had to find some place to go. It was too cool to sit outside so I sat in John's car and read a book and even took a nap. Other then clean we really didn't do much because I didn't have to go to the clinic. I have tomorrow off also. It will be a short night because John is getting a wake up call at 2:45a.m. so he can shower and leave for the airport. His flight leaves at 6 a.m. I am so glad that I have the day off. John and I had an awesome week together. Can't believe that the week is already over. Dena, don't worry he was a very good caregiver. He moved all the furniture and cleaned behind everything.
Dad and Corinne came down this afternoon and will be here until Rodney gets here on Friday.
I am sorry to hear about Shirley's dad passing but I know that he is at peace and has no more pain. Shirley and Dennis I will keep you in my thoughts and prayers.
Good night guys,
God Bless all of You,
Gloria
Monday, October 27, 2008
day 44 after transplant
Hey everybody,
I am blogging earlier tonight because I had a big day and I am going to bed early.
I had to be at the clinic today at 10. When we left the hotel the sun was out and really bright. When we got out of clinic at 1 the wind was blowing and it was cold and raining. I just had a sweatshirt on and I about froze.
I had a short day at the clinic and I don't go back until Thursday. The first results came back from my bone marrow and it looks good but the final results have not come back yet.
The Confederacy White House and Museum is really close to the hospital - as a matter of fact the hospital is built all around the Museum. John was interested in going to see them, so I told him for his birthday I would take him. The White House was a guided tour and the guide was very informative and the house was beautiful. Stood in the room where Abraham Lincoln was 4 days before he was killed in Washington, DC.
Came back to the hotel and ate a bite of lunch and then we finished a puzzle that we had started. Finally got it finished. It was a big one 39" x 20". It was one that was in my sunshine box from school. Dad and Corinne are coming down tomorrow afternoon and staying the night with friends so they can be here when John has to go to the airport(his flight leaves at 6:15 am). They will be here Thursday and Friday until Rodney gets here.
Thanks for your prayers - they sure do work,
God Bless all of you,
I am blogging earlier tonight because I had a big day and I am going to bed early.
I had to be at the clinic today at 10. When we left the hotel the sun was out and really bright. When we got out of clinic at 1 the wind was blowing and it was cold and raining. I just had a sweatshirt on and I about froze.
I had a short day at the clinic and I don't go back until Thursday. The first results came back from my bone marrow and it looks good but the final results have not come back yet.
The Confederacy White House and Museum is really close to the hospital - as a matter of fact the hospital is built all around the Museum. John was interested in going to see them, so I told him for his birthday I would take him. The White House was a guided tour and the guide was very informative and the house was beautiful. Stood in the room where Abraham Lincoln was 4 days before he was killed in Washington, DC.
Came back to the hotel and ate a bite of lunch and then we finished a puzzle that we had started. Finally got it finished. It was a big one 39" x 20". It was one that was in my sunshine box from school. Dad and Corinne are coming down tomorrow afternoon and staying the night with friends so they can be here when John has to go to the airport(his flight leaves at 6:15 am). They will be here Thursday and Friday until Rodney gets here.
Thanks for your prayers - they sure do work,
God Bless all of you,
Sunday, October 26, 2008
day 43 after transplant
Hey, to all,
Sorry that this is so late. John and I are putting another puzzle together and I lost track of time. Then I had to put my meds together.
I go to the clinic tomorrow and I hope that I will get some results back from some of my tests, especially the bone marrow biospy. I need one more negative result before I can be taken out of isolation for this virus.
Today was sunny and a beautiful fall day. We showed John some of Richmond. We went to Bell's Island. There is a lot of Civil War info there and then a long bridge to walk over to Bell's Island. I was tired when we got back to the car. Came back to the hotel and fixed a quick dinner so Rodney could leave. Didn't want him on the road after dark.
I am ready to go to bed and get up early tomorrow and get to the clinic.
Heard that church went well today and that 17 members joined the church and there was a reception for the new members. Way to go! Was told that the 8:30 service was pretty full. Sure do miss being there.
Good night to all,
Love,
Gloria
Sorry that this is so late. John and I are putting another puzzle together and I lost track of time. Then I had to put my meds together.
I go to the clinic tomorrow and I hope that I will get some results back from some of my tests, especially the bone marrow biospy. I need one more negative result before I can be taken out of isolation for this virus.
Today was sunny and a beautiful fall day. We showed John some of Richmond. We went to Bell's Island. There is a lot of Civil War info there and then a long bridge to walk over to Bell's Island. I was tired when we got back to the car. Came back to the hotel and fixed a quick dinner so Rodney could leave. Didn't want him on the road after dark.
I am ready to go to bed and get up early tomorrow and get to the clinic.
Heard that church went well today and that 17 members joined the church and there was a reception for the new members. Way to go! Was told that the 8:30 service was pretty full. Sure do miss being there.
Good night to all,
Love,
Gloria
Saturday, October 25, 2008
day 42 after transplant
Good evening!
I can't believe that this is day 42 - soon I will be half way to my 100 days. Woke up to rain this morning and it was misty all day,
Went to clinic this morning. They weren't busy so they got my labs quickly and then they wanted to do some other labs. So I got a small bag of saline,bottle of antibodtic and some magnesium. Judy was my nurse (during the week she is the bone marrow coordinator) but likes to work some weekends to keep in practice. She said that she was really impressed with my blood work. She said that my platlets were 182,000 with is good for a normal person.
After we got out of the clinic we showed John some of Richmond. Especially the historial parts. Then we stopped at the grocery store for a few things and came back to the hotel to eat lunch.
John and I got a puzzle out last night so John finished it this afternoon and now he is working on another one. I will be helping him as soon as I finish blogging.
I don't have to go to clinic tomorrow so hope to sleep in a little and then watch Charles Stanley on TV. I still miss BUMC.
Thanks for all your continued support and your cards. I have gotten over 300 cards. I have gotten letters from the students that I worked with last year. It was so good to hear from them and to know that they miss me. I miss them also.
God Bless,
Gloria
I can't believe that this is day 42 - soon I will be half way to my 100 days. Woke up to rain this morning and it was misty all day,
Went to clinic this morning. They weren't busy so they got my labs quickly and then they wanted to do some other labs. So I got a small bag of saline,bottle of antibodtic and some magnesium. Judy was my nurse (during the week she is the bone marrow coordinator) but likes to work some weekends to keep in practice. She said that she was really impressed with my blood work. She said that my platlets were 182,000 with is good for a normal person.
After we got out of the clinic we showed John some of Richmond. Especially the historial parts. Then we stopped at the grocery store for a few things and came back to the hotel to eat lunch.
John and I got a puzzle out last night so John finished it this afternoon and now he is working on another one. I will be helping him as soon as I finish blogging.
I don't have to go to clinic tomorrow so hope to sleep in a little and then watch Charles Stanley on TV. I still miss BUMC.
Thanks for all your continued support and your cards. I have gotten over 300 cards. I have gotten letters from the students that I worked with last year. It was so good to hear from them and to know that they miss me. I miss them also.
God Bless,
Gloria
Friday, October 24, 2008
day 41 after transplant
Good evening,
Today was good but busy. I had to go to the clinic at 10:30. They were doubling people up in the isolation rooms. I got in the small room and they brought in another lounge chair and then brought in a young girl. We were only about 3 feet apart! She was sneezing and coughing. She said that she got this virus a week ago. I am almost over mine. I can finally taste my food. Before I could ask if I could be moved they came in and took her out because she needed to be seen by the doctor. I sure don't need to get this stuff back. I felt sorry for the nurse because her hands were tied because she had to do what the head nurse said. She tried to get the head nurse to put the patients in exam rooms so there would be only one to a room.
I had to get a small bag of saline, magnesium, and my antiboditic and get some meds changed and refilled. So we had to go to CVS to pick up meds. John saw a statue on top of a hill near the CVS and he wondered if I could walk there. Well I needed to get my exercise so off we went. What a beautiful view of Richmond from on top of the hill. The street name was Libby Terrace! They had a lot of houses that were very old and very well kept up. I showed John St Johns Church where Patrick Henry made his famous speech, Give me liberty or give me death.
Came back to the hotel and fixed lunch and then we got out a picture puzzle to put together. A picture of a red barn in the snow. I worked on it until 10 when I had to stop to get my meds together but John is still working on it.
I have to go to clinic tomorrow. I have to fast because they are going to test my lipid pannel and my thyroid. I will get my antiboditic also. Hope it won't take too long.
Rodney got here at 8 tonight and we fixed him dinner. Good to see his face again.
Well I am going to turn in for tonight. Continue to pray that all my tests will come back negative.
If this stuff that Dr. Toor thinks is a yeast infection but the nurse pract. thinks that it is graft vs host disease. If is is not better by next week I will have to have a skin scraping to test it to see for sure what it is.
God Bless All of You,
Gloria
Today was good but busy. I had to go to the clinic at 10:30. They were doubling people up in the isolation rooms. I got in the small room and they brought in another lounge chair and then brought in a young girl. We were only about 3 feet apart! She was sneezing and coughing. She said that she got this virus a week ago. I am almost over mine. I can finally taste my food. Before I could ask if I could be moved they came in and took her out because she needed to be seen by the doctor. I sure don't need to get this stuff back. I felt sorry for the nurse because her hands were tied because she had to do what the head nurse said. She tried to get the head nurse to put the patients in exam rooms so there would be only one to a room.
I had to get a small bag of saline, magnesium, and my antiboditic and get some meds changed and refilled. So we had to go to CVS to pick up meds. John saw a statue on top of a hill near the CVS and he wondered if I could walk there. Well I needed to get my exercise so off we went. What a beautiful view of Richmond from on top of the hill. The street name was Libby Terrace! They had a lot of houses that were very old and very well kept up. I showed John St Johns Church where Patrick Henry made his famous speech, Give me liberty or give me death.
Came back to the hotel and fixed lunch and then we got out a picture puzzle to put together. A picture of a red barn in the snow. I worked on it until 10 when I had to stop to get my meds together but John is still working on it.
I have to go to clinic tomorrow. I have to fast because they are going to test my lipid pannel and my thyroid. I will get my antiboditic also. Hope it won't take too long.
Rodney got here at 8 tonight and we fixed him dinner. Good to see his face again.
Well I am going to turn in for tonight. Continue to pray that all my tests will come back negative.
If this stuff that Dr. Toor thinks is a yeast infection but the nurse pract. thinks that it is graft vs host disease. If is is not better by next week I will have to have a skin scraping to test it to see for sure what it is.
God Bless All of You,
Gloria
Thursday, October 23, 2008
day 40 after transplant
Good evening to all,
I had a good easy day and it was nice to have a day off from clinic. I go tomorrow and I hope that it will be a short day. My twin came in tonight (my brother who is bald). We got our picture taken and we laughed like crazy.
Dena left and Dad and Corinne came to stay until John got here. Dena thanks so much for all you did for me. It was fun to catch up and laugh alot. John has already become Betty Crocker and Josephine the cleaner. Dena I don't think you have to worry that he can't do what he is suppose to do. He cleaned the kitchen and even took the knobs off the stove and cleaned them.
It is cool down here. I walked the hall today instead of going outside.
I am going to take my 10 pm meds and then go to bed. Get up early and take a shower and go to the clinic.
Thanks for your continued support and prayers. They sure work.
Love,
Gloria
I had a good easy day and it was nice to have a day off from clinic. I go tomorrow and I hope that it will be a short day. My twin came in tonight (my brother who is bald). We got our picture taken and we laughed like crazy.
Dena left and Dad and Corinne came to stay until John got here. Dena thanks so much for all you did for me. It was fun to catch up and laugh alot. John has already become Betty Crocker and Josephine the cleaner. Dena I don't think you have to worry that he can't do what he is suppose to do. He cleaned the kitchen and even took the knobs off the stove and cleaned them.
It is cool down here. I walked the hall today instead of going outside.
I am going to take my 10 pm meds and then go to bed. Get up early and take a shower and go to the clinic.
Thanks for your continued support and prayers. They sure work.
Love,
Gloria
Wednesday, October 22, 2008
day 39 after transplant
Hello,
It was sunny but cool today. We left for the clinic early this morning because Obama was to be at the colliseum today which is really close to the hospital. The news said that the colliseum could hold 13,000 people! Heard on the news tonight that they filled the colliseum and about 5000 people stood outside. We were afraid that the traffic would be bad but it wasn't at the time we got there.
I had labs drawn today as usual and then I got my antibiotic, saline and mageseum. The nurse pract. and the doctor both came to see me. I have a discoloration under my arms and on my legs and the nurse pract. thought that it might be the beginning of graft vs host. She wanted to send me to the dermo. to get a skin scraping. Dr. Toor came in and he said that he thought that it was yeast infection and he didn't want to do the skin scraping because that would leave an opening for infection. So now I have to shower with Selsun Blue and apply another kind of creme. I am also to eat yogurt.
We got back to the hotel and Dena fixed me some wonderful potato soup. That warmed up my tummy. While Dena was doing laundry I sit in the lounge chair for a nap until the phone rang and scared me to death.
We watched a movie tonight. A funny one so we got to do a lot of laughing. Now that I have all my meds ready for tomorrow I am ready to go to bed. I get the day off tomorrow but go on Friday. John comes in tomorrow, pray for a safe flight for him. Dena will go home and Dad and Corinne will be here until John gets here.
God Bless all of you. Miss all of you.
Gloria
It was sunny but cool today. We left for the clinic early this morning because Obama was to be at the colliseum today which is really close to the hospital. The news said that the colliseum could hold 13,000 people! Heard on the news tonight that they filled the colliseum and about 5000 people stood outside. We were afraid that the traffic would be bad but it wasn't at the time we got there.
I had labs drawn today as usual and then I got my antibiotic, saline and mageseum. The nurse pract. and the doctor both came to see me. I have a discoloration under my arms and on my legs and the nurse pract. thought that it might be the beginning of graft vs host. She wanted to send me to the dermo. to get a skin scraping. Dr. Toor came in and he said that he thought that it was yeast infection and he didn't want to do the skin scraping because that would leave an opening for infection. So now I have to shower with Selsun Blue and apply another kind of creme. I am also to eat yogurt.
We got back to the hotel and Dena fixed me some wonderful potato soup. That warmed up my tummy. While Dena was doing laundry I sit in the lounge chair for a nap until the phone rang and scared me to death.
We watched a movie tonight. A funny one so we got to do a lot of laughing. Now that I have all my meds ready for tomorrow I am ready to go to bed. I get the day off tomorrow but go on Friday. John comes in tomorrow, pray for a safe flight for him. Dena will go home and Dad and Corinne will be here until John gets here.
God Bless all of you. Miss all of you.
Gloria
Tuesday, October 21, 2008
day 38 after transplant
Good evening to all,
This is going to be a short one tonight because I am going to bed earlier tonight. Dena and I stayed up too late last night talking! Thank goodness I didn't have to go to clinic today. I go tomorrow and I hope that I will have a short visit and that maybe some of my test results will be back. I heard on the news tonight that Obama is going to be in Richmond tomorrow at the colliseum which only 2 blocks from the hosiptal. I sure hope that we don't have trouble getting to the parking deck.
Dena cleaned the suite today and did laundry. I took a book and went out at the gazbo and read while she was cleaning. It was a little cool but I had on a sweatshirt and I was fine. You don't realize how much heat you lose when you don't have any hair. It felt good to be out in the fresh air. I rode the bike in the exercise room while waiting for my clothes to dry. That felt good to get my legs moving.
We didn't go anywhere today. It was good just to be in the room and talk and read. Dena did some cross stitch and mended one of my socks.
Well, I told you this would be short so, I am going to bed.
Night to everyone and thanks so much for your continued prayers, cards and support.
Love,
Gloria
This is going to be a short one tonight because I am going to bed earlier tonight. Dena and I stayed up too late last night talking! Thank goodness I didn't have to go to clinic today. I go tomorrow and I hope that I will have a short visit and that maybe some of my test results will be back. I heard on the news tonight that Obama is going to be in Richmond tomorrow at the colliseum which only 2 blocks from the hosiptal. I sure hope that we don't have trouble getting to the parking deck.
Dena cleaned the suite today and did laundry. I took a book and went out at the gazbo and read while she was cleaning. It was a little cool but I had on a sweatshirt and I was fine. You don't realize how much heat you lose when you don't have any hair. It felt good to be out in the fresh air. I rode the bike in the exercise room while waiting for my clothes to dry. That felt good to get my legs moving.
We didn't go anywhere today. It was good just to be in the room and talk and read. Dena did some cross stitch and mended one of my socks.
Well, I told you this would be short so, I am going to bed.
Night to everyone and thanks so much for your continued prayers, cards and support.
Love,
Gloria
Monday, October 20, 2008
day 37 after transplant
It's me again,
I went to the clinic today and it was a long day (10 to 3). They had double booked and a lot of people needed to be in isolation. They tried to put me in a very small room with another lady and I asked if I couldn't go down the hall to my favorite room. I am so glad the they let me do that because the first room was so small that the other lady would have had to almost be sitting on my lap. I thought isolation was only one person to a room. Then it took them an hour until they even started my blood work and my IV's. Then I had to do another nose drop culture and they wanted a urine sample and I had to have a chest xray. I also saw the nurse prat.. I get tomorrow off. I looking forward to just easing around.
When we got back to the hotel Dena did my linens off of my bed and I sat in the lounge chair and read and took a power nap.
The clinic called back this afternoon and my stomach got a knot in it. She asked me how I was doing and I said fine I think. They just wanted to change one of my meds. I asked her if the results had come back from my bone marrow biopsy and she said that the final results wouldn't be back for another 2 weeks but the preliminary looked good. Please continue to pray that the results will be good. Hard to wait 2 weeks but I have had to learn a lot of patience over the last several years.
Ate dinner and waiting for 10 so I can take my last meds for the day and then I am going to bed. Been a long day.
Dena and I are having a good time catching up on things. It is so wonderful to spend some time with her again. She is a new Grandmother of a little girl.
Not much else is happening so I will say good night to all. Miss you.
Love Gloria
I went to the clinic today and it was a long day (10 to 3). They had double booked and a lot of people needed to be in isolation. They tried to put me in a very small room with another lady and I asked if I couldn't go down the hall to my favorite room. I am so glad the they let me do that because the first room was so small that the other lady would have had to almost be sitting on my lap. I thought isolation was only one person to a room. Then it took them an hour until they even started my blood work and my IV's. Then I had to do another nose drop culture and they wanted a urine sample and I had to have a chest xray. I also saw the nurse prat.. I get tomorrow off. I looking forward to just easing around.
When we got back to the hotel Dena did my linens off of my bed and I sat in the lounge chair and read and took a power nap.
The clinic called back this afternoon and my stomach got a knot in it. She asked me how I was doing and I said fine I think. They just wanted to change one of my meds. I asked her if the results had come back from my bone marrow biopsy and she said that the final results wouldn't be back for another 2 weeks but the preliminary looked good. Please continue to pray that the results will be good. Hard to wait 2 weeks but I have had to learn a lot of patience over the last several years.
Ate dinner and waiting for 10 so I can take my last meds for the day and then I am going to bed. Been a long day.
Dena and I are having a good time catching up on things. It is so wonderful to spend some time with her again. She is a new Grandmother of a little girl.
Not much else is happening so I will say good night to all. Miss you.
Love Gloria
Sunday, October 19, 2008
day 36 after transplant
Hello,
Today was a cool one. It was in the 50's and last Sunday it was 88 degrees. That's a big change. My poor head got cold.
Went to the clinic today and they took my labs, gave me an IV of saline and magesium and they did my antibotic for me. I have to go to clinic tomorrow and get another chest xray and labs and cultures. Hope that it won't be too long.
Dena Wheelbarger is now my caregiver until Thursday and then my brother John comes in. Dena is a friend from high school and so we will have a lot of laughs about our high school days. She is a hoot.
John will be here from Thursday to Wednesday and I am anxious to see him. He lives in AZ.
Rodney left and will be back next Friday.
Hope things went well at church today and I miss everyone.
Well I am going to sign off and soon go to bed and crash and burn. I am pretty tired.
God Bless each and everyone one of you. I love you.
Gloria
Today was a cool one. It was in the 50's and last Sunday it was 88 degrees. That's a big change. My poor head got cold.
Went to the clinic today and they took my labs, gave me an IV of saline and magesium and they did my antibotic for me. I have to go to clinic tomorrow and get another chest xray and labs and cultures. Hope that it won't be too long.
Dena Wheelbarger is now my caregiver until Thursday and then my brother John comes in. Dena is a friend from high school and so we will have a lot of laughs about our high school days. She is a hoot.
John will be here from Thursday to Wednesday and I am anxious to see him. He lives in AZ.
Rodney left and will be back next Friday.
Hope things went well at church today and I miss everyone.
Well I am going to sign off and soon go to bed and crash and burn. I am pretty tired.
God Bless each and everyone one of you. I love you.
Gloria
Saturday, October 18, 2008
day 35 after transplant
It's me again !
I had a wonderful day. I didn't have to go to the clinic. Scott, Beth, Grady, Libby, Ryan and Jennifer came down to celebrate October birthdays. Today my baby turned 25! Seems just like yesterday that he was born. Grady had a birthday on October 9th and Beth has a October 26th birthday. It was good to spend the day with them. The men went to KFC and Captain D's and brought lunch back to the hotel. I made mac and cheese for the kids. It wouldn't be like going to Mamaw's without that. Rodney and I went to Food Lion last night and got a cake for them. The food sure looked good but I couldn't eat a bit of it. I can not eat fast food. I'm not sure if chemo or this cold has my smell messed up but I couldn't smell a thing and that was probably a good thing.
After the kids left Rodney did a little Travelers work and I did some paper work and watched the UVA and now we are watching the Tech game.
I gave myself my first antibiodic IV here today and I hope that I did it correct. Thanks to Holly for writing it out step by step because "Lucy and Ethel" sure didn't help that much yesterday.
It was kind of neat the way it worked. It looks like a balloon in a bottle and it is under pressure and it is finished when the balloon goes flat.
While Scott was here today he put a picture of my caregiver Pam Cox back on day 27 entry just incase you would like to go back to look at the picture.
I am soon going to bed. I have to go to clinic tomorrow. Hope for a short visit. Then Dena Wheelbarger will be my caregiver until Thursday and then my brother will be here for a week.
God Bless,
Gloria
I had a wonderful day. I didn't have to go to the clinic. Scott, Beth, Grady, Libby, Ryan and Jennifer came down to celebrate October birthdays. Today my baby turned 25! Seems just like yesterday that he was born. Grady had a birthday on October 9th and Beth has a October 26th birthday. It was good to spend the day with them. The men went to KFC and Captain D's and brought lunch back to the hotel. I made mac and cheese for the kids. It wouldn't be like going to Mamaw's without that. Rodney and I went to Food Lion last night and got a cake for them. The food sure looked good but I couldn't eat a bit of it. I can not eat fast food. I'm not sure if chemo or this cold has my smell messed up but I couldn't smell a thing and that was probably a good thing.
After the kids left Rodney did a little Travelers work and I did some paper work and watched the UVA and now we are watching the Tech game.
I gave myself my first antibiodic IV here today and I hope that I did it correct. Thanks to Holly for writing it out step by step because "Lucy and Ethel" sure didn't help that much yesterday.
It was kind of neat the way it worked. It looks like a balloon in a bottle and it is under pressure and it is finished when the balloon goes flat.
While Scott was here today he put a picture of my caregiver Pam Cox back on day 27 entry just incase you would like to go back to look at the picture.
I am soon going to bed. I have to go to clinic tomorrow. Hope for a short visit. Then Dena Wheelbarger will be my caregiver until Thursday and then my brother will be here for a week.
God Bless,
Gloria
Friday, October 17, 2008
day 34 after transplant
Hello everyone,
I woke up to rain beating against my window this morning and the temperature was in the 50's. Qiute different from the 80's yesterday. I guess fall is upon us.
We had to be at clinic this morning at 9:45 so we didn't have time to waste. It was a long day at the clinic, probably the longest day that I have spent there. The reason it took so long was because I had to wait for the new antibodic that I need for this positive culture. The meds that the pharmacy had was frozen and had to thawed. The nose drop test (test for this virus) was negative but they need two negative tests before I will be out of isolation. I will probably have another test next week. They say that now it is considered just a cold. I feel fine but just have an annoying cough.
Holly went home today and Rodney is here now. Thanks Holly for a good week. You did a good job and I am so thankful to you for leaving your husband and boys to take care of me.
A man is suppose to be here tonight to bring me the antibodic that I need for tomorrow. "Lucy and Ethel " (home care nurses) taught me what I was suppose to do -- they were really dingy! The nurse that was taking care of me today gave the ladies that name. Thank goodness Holly was there to write things down and we asked a lot of questions. It is like a balloon in a bottle that is under pressure. I can hook up to my line and put it in my pocket and walk around.
I get the day off tomorrow and the kids are coming tomorrow to celebrate all the October birthdays. Ryan, my baby will be 25 years old! Grady just turned 9 and then Beth has a birthday also.
It has been a long day and I am going to bed but I wanted to blog because I know that a lot of you look for it every night.
God Bless All of You,
Gloria
I woke up to rain beating against my window this morning and the temperature was in the 50's. Qiute different from the 80's yesterday. I guess fall is upon us.We had to be at clinic this morning at 9:45 so we didn't have time to waste. It was a long day at the clinic, probably the longest day that I have spent there. The reason it took so long was because I had to wait for the new antibodic that I need for this positive culture. The meds that the pharmacy had was frozen and had to thawed. The nose drop test (test for this virus) was negative but they need two negative tests before I will be out of isolation. I will probably have another test next week. They say that now it is considered just a cold. I feel fine but just have an annoying cough.
Holly went home today and Rodney is here now. Thanks Holly for a good week. You did a good job and I am so thankful to you for leaving your husband and boys to take care of me.
A man is suppose to be here tonight to bring me the antibodic that I need for tomorrow. "Lucy and Ethel " (home care nurses) taught me what I was suppose to do -- they were really dingy! The nurse that was taking care of me today gave the ladies that name. Thank goodness Holly was there to write things down and we asked a lot of questions. It is like a balloon in a bottle that is under pressure. I can hook up to my line and put it in my pocket and walk around.
I get the day off tomorrow and the kids are coming tomorrow to celebrate all the October birthdays. Ryan, my baby will be 25 years old! Grady just turned 9 and then Beth has a birthday also.
It has been a long day and I am going to bed but I wanted to blog because I know that a lot of you look for it every night.
God Bless All of You,
Gloria
Thursday, October 16, 2008
day 33 after transplant
Good evening,
The weather here was beautiful -- 88 degrees. Now tomorrow they are calling for the 60's to be the high.
Holly did laundry today and then we went to Chesterfield Mall to walk. It was not crowded and a good time to walk. Came back to the hotel and I laid down to rest. Got woke up by the phone ringing and it was the clinic. Not what I wanted to hear-- the culture that they thought was just comtaminated came by positive again. I go to clinic tomorrow and they are going to give me a bag of some kind of antibiotic. Then they are going to bring in a home care nurse to show me how to do this bag at the hotel on my off days from the clinic. The days I go to clinic they will give it to me. She said that way I won't have to come to the clinic just to get the antibiotic. I do this for 14 days. They don't know what it is but they don't want to wait for 10 days when the results will come back to give me something. She assured me that this was not anything unusual. The good thing is that I am not running a fever or feel bad. This too shall pass.
The nurse at the hospital when they discharged me told me that I may be doing fine now but not to get unset if there would be a time I would have some down days. Every day I have is one less bad day. God is here to take care of me.
Good night to all. Continue those prayers.
Love to all,
Gloria
The weather here was beautiful -- 88 degrees. Now tomorrow they are calling for the 60's to be the high.
Holly did laundry today and then we went to Chesterfield Mall to walk. It was not crowded and a good time to walk. Came back to the hotel and I laid down to rest. Got woke up by the phone ringing and it was the clinic. Not what I wanted to hear-- the culture that they thought was just comtaminated came by positive again. I go to clinic tomorrow and they are going to give me a bag of some kind of antibiotic. Then they are going to bring in a home care nurse to show me how to do this bag at the hotel on my off days from the clinic. The days I go to clinic they will give it to me. She said that way I won't have to come to the clinic just to get the antibiotic. I do this for 14 days. They don't know what it is but they don't want to wait for 10 days when the results will come back to give me something. She assured me that this was not anything unusual. The good thing is that I am not running a fever or feel bad. This too shall pass.
The nurse at the hospital when they discharged me told me that I may be doing fine now but not to get unset if there would be a time I would have some down days. Every day I have is one less bad day. God is here to take care of me.
Good night to all. Continue those prayers.
Love to all,
Gloria
Wednesday, October 15, 2008
day 32 after transplant
Good evening to all,
Didn't want to wait to late tonight to blog because I knew you would be anxious to hear about my day at the clinic. I got to the clinic at 10 and they took my labs first. Will not know about the results of the lab work that they called me back in for yesterday. That should be back tomorrow. The nurse pract. said that she felt sure that it was a contaminated bottle. That made me feel a little better. Then I did a nasal test to see how this virus is going (away I hope).
Then it came time for me to have the bone marrow biospy. Dr. Rilley was wonderful. They gave me something just to relax me but still be aware of what was happening. The nurse stood by my side and held my hand the whole time. He told me before he started what he was going to do from start to finish. Before he did anything he would tell me, now I am going to rub this cold stuff to clean the area, next I am going to numb you and let me know if you feel pain, etc. He was fantastic! Thank you prayer warriors. I could feel your prayers and the procedure went very well. After it was over I had to lay flat on my back for half and hour. I will not know the results for about a week.
Came back to the hotel and ate a little lunch and then sit on the lounge chair to try to read but I couldn't keep my eyes open. Next thing I knew it was 5:30.
I do not have to go to clinic tomorrow but will go on Friday. It will be nice to be able to rest tomorrow and let this heal.
I know that I got along so well was because there was a lot of prayers going up and I could feel God's hand on me. I also give God the credit for guiding the doctors hands.
Rodney got to eat with Denny and the Beast tonight and I heard that she made some fabulous beef stew. Thanks Pam for taking care of Rodney.
God Bless all of you,
Gloria
Didn't want to wait to late tonight to blog because I knew you would be anxious to hear about my day at the clinic. I got to the clinic at 10 and they took my labs first. Will not know about the results of the lab work that they called me back in for yesterday. That should be back tomorrow. The nurse pract. said that she felt sure that it was a contaminated bottle. That made me feel a little better. Then I did a nasal test to see how this virus is going (away I hope).
Then it came time for me to have the bone marrow biospy. Dr. Rilley was wonderful. They gave me something just to relax me but still be aware of what was happening. The nurse stood by my side and held my hand the whole time. He told me before he started what he was going to do from start to finish. Before he did anything he would tell me, now I am going to rub this cold stuff to clean the area, next I am going to numb you and let me know if you feel pain, etc. He was fantastic! Thank you prayer warriors. I could feel your prayers and the procedure went very well. After it was over I had to lay flat on my back for half and hour. I will not know the results for about a week.
Came back to the hotel and ate a little lunch and then sit on the lounge chair to try to read but I couldn't keep my eyes open. Next thing I knew it was 5:30.
I do not have to go to clinic tomorrow but will go on Friday. It will be nice to be able to rest tomorrow and let this heal.
I know that I got along so well was because there was a lot of prayers going up and I could feel God's hand on me. I also give God the credit for guiding the doctors hands.
Rodney got to eat with Denny and the Beast tonight and I heard that she made some fabulous beef stew. Thanks Pam for taking care of Rodney.
God Bless all of you,
Gloria
Tuesday, October 14, 2008
day 32 after transplant
Hi!
Thought that I would blog a little earlier tonight. Got a big day tomorrow -- bone marrow biospy at 10. Please remember to say a prayer for me at this time. It would be much appreciated. I know that I will not be alone tomorrow during this treatment - God will be right there to comfort me.
I had the day off today. Holly cleaned the room so while she was doing that I went outside in the gazebo and wrote thank you cards and birthday cards and sympathy cards. It was a beautiful day. We ate lunch and was deciding which mall to go to and then the phone rang. It was the clinic and they said that one of the cultures they took yesterday came back positive. They wanted me to come in and do it over again. They had to take blood out of my arm and this was the first time since I have had my port and hickman line put in that I got blood taken out of my arm. I was about to freak out. The nurse couldn't have been more gentle but it still hurt. They said that it could be a contaminated bottle or something else going on. I pray that it will come back negative tomorrow.
Came back to the hotel and I rested and tried not to worry. I must remember that God has been so good this far and he will see me through this too.
Good night all,
Gloria
Thought that I would blog a little earlier tonight. Got a big day tomorrow -- bone marrow biospy at 10. Please remember to say a prayer for me at this time. It would be much appreciated. I know that I will not be alone tomorrow during this treatment - God will be right there to comfort me.
I had the day off today. Holly cleaned the room so while she was doing that I went outside in the gazebo and wrote thank you cards and birthday cards and sympathy cards. It was a beautiful day. We ate lunch and was deciding which mall to go to and then the phone rang. It was the clinic and they said that one of the cultures they took yesterday came back positive. They wanted me to come in and do it over again. They had to take blood out of my arm and this was the first time since I have had my port and hickman line put in that I got blood taken out of my arm. I was about to freak out. The nurse couldn't have been more gentle but it still hurt. They said that it could be a contaminated bottle or something else going on. I pray that it will come back negative tomorrow.
Came back to the hotel and I rested and tried not to worry. I must remember that God has been so good this far and he will see me through this too.
Good night all,
Gloria
Monday, October 13, 2008
day 31 after transplant
Greetins to all,
Believe it or not I had another wonderful day. The weather was beautiful and the day at the clinic was good. I had to have magnesum and potassium and a small bag of saline. Then I had to have another chest xray. I have tomorrow off. That is probably a good thing because the hopsital is opening the new Critcal Care Unit and there is suppose to be a lot of dignitaries (like the governor) there. So I'm sure it would be pretty crazy. Hope to be able to show Holly around a little bit, maybe go to a mall. Need to get my walk in some way.
Yes, Pam, Holly has been reminding to drink and drink and to put sun screen on. I think that she knows the routine already.
I felt a little lazy today. Maybe because I did so much walking on Sunday. I sit in the lounge chair while Holly was laundrying my bed linens. I was reading and the next thing I knew it, it was 6:00.
I have to be at the clinic Wednesday at 10 and the bone marrow biospy will be at 11. Please remember me in your prayers that it will go well. I had 3 biopsys and they aren't the most pleasant but God's arms are really comforting.
I again want to thank all my caregivers that have changed their schedule to take care of me. I don't know how I will ever be able to repay you. I just wonder what people do that don't have the support of family, friends and church.
I will close for tonight and get ready for bed.
Love to all,
Gloria
Believe it or not I had another wonderful day. The weather was beautiful and the day at the clinic was good. I had to have magnesum and potassium and a small bag of saline. Then I had to have another chest xray. I have tomorrow off. That is probably a good thing because the hopsital is opening the new Critcal Care Unit and there is suppose to be a lot of dignitaries (like the governor) there. So I'm sure it would be pretty crazy. Hope to be able to show Holly around a little bit, maybe go to a mall. Need to get my walk in some way.
Yes, Pam, Holly has been reminding to drink and drink and to put sun screen on. I think that she knows the routine already.
I felt a little lazy today. Maybe because I did so much walking on Sunday. I sit in the lounge chair while Holly was laundrying my bed linens. I was reading and the next thing I knew it, it was 6:00.
I have to be at the clinic Wednesday at 10 and the bone marrow biospy will be at 11. Please remember me in your prayers that it will go well. I had 3 biopsys and they aren't the most pleasant but God's arms are really comforting.
I again want to thank all my caregivers that have changed their schedule to take care of me. I don't know how I will ever be able to repay you. I just wonder what people do that don't have the support of family, friends and church.
I will close for tonight and get ready for bed.
Love to all,
Gloria
Sunday, October 12, 2008
day 30 after transplant
Hello everyone,
Another good day. The weather was beautiful and Rodney and I went to Richmond's Folk Festival on Brown's Island. What a beautiful place. It is full of history down along the canal. There was a lot of people there but they were scattered so I didn't feel uncomfortable. A lot of the tents were set up in the grass but I had to stay on the walkways. I knew that I couldn't eat anything there but there was all kinds of food there. The craft tents were in the grass so I couldn't go there -- maybe that was a good thing. When I felt like I was getting tired we walked back to the car. It was so good to be out and about.
Holly is here to be my caregiver this week and it will be good to be with her for a week. She might like it here so well she'll just stay!
I go tomorrow to the clinic at 9:45. I have been drinking over 100 oz of fluid so hopefully that will mean another short visit.
Becky emailed me that there was a big turn out at the breakfast and service today. I am so glad. You couldn't have asked for a more beautiful day. I sure missed it. We listened to Charles Stanley on TV this morning. It was so about Joseph and that is exactly what I read this week when I was reading my Bible. Not a coincidence -- it was a Godincidence!
Well I will go to bed early so we can get to the clinic in time.
Take care everyone and have a wonderful week.
God Bless,
Gloria
Another good day. The weather was beautiful and Rodney and I went to Richmond's Folk Festival on Brown's Island. What a beautiful place. It is full of history down along the canal. There was a lot of people there but they were scattered so I didn't feel uncomfortable. A lot of the tents were set up in the grass but I had to stay on the walkways. I knew that I couldn't eat anything there but there was all kinds of food there. The craft tents were in the grass so I couldn't go there -- maybe that was a good thing. When I felt like I was getting tired we walked back to the car. It was so good to be out and about.
Holly is here to be my caregiver this week and it will be good to be with her for a week. She might like it here so well she'll just stay!
I go tomorrow to the clinic at 9:45. I have been drinking over 100 oz of fluid so hopefully that will mean another short visit.
Becky emailed me that there was a big turn out at the breakfast and service today. I am so glad. You couldn't have asked for a more beautiful day. I sure missed it. We listened to Charles Stanley on TV this morning. It was so about Joseph and that is exactly what I read this week when I was reading my Bible. Not a coincidence -- it was a Godincidence!
Well I will go to bed early so we can get to the clinic in time.
Take care everyone and have a wonderful week.
God Bless,
Gloria
Saturday, October 11, 2008
day 29 after transplant
Hello everyone!
It was good to have the day off. We just kind of eased around this morning. Catching up with the mail and etc.
The weather was beautiful so we found a Costco to pick up a few things. It was good to be out and see more of Richmond. Don't know what we will do tomorrow. Hopefully find a park to walk in.
Holly Tutwiler is my next caregiver and I am excited about her being here this week. Hope it will be full of laughs. Laughter is the best medicine.
We watched the UVA game and listened to the JMU game on the radio.
Sounds like an exciting day tomorrow at church starting with breakfast and then church on the lawn. You should have a beautiful day for it. Will miss being there but will be there in spirit.
Short blog for tonight.
God Bless,
Gloria
It was good to have the day off. We just kind of eased around this morning. Catching up with the mail and etc.
The weather was beautiful so we found a Costco to pick up a few things. It was good to be out and see more of Richmond. Don't know what we will do tomorrow. Hopefully find a park to walk in.
Holly Tutwiler is my next caregiver and I am excited about her being here this week. Hope it will be full of laughs. Laughter is the best medicine.
We watched the UVA game and listened to the JMU game on the radio.
Sounds like an exciting day tomorrow at church starting with breakfast and then church on the lawn. You should have a beautiful day for it. Will miss being there but will be there in spirit.
Short blog for tonight.
God Bless,
Gloria
Friday, October 10, 2008
day 28 after transplant
Sorry for being late. I know that a lot of you read my blog every night.
First I want to praise God -He is so awesome. I went to the clinic today and got a small IV of magnesium. The chest x-ray turned out to be normal and then I got some really good news that I don't have to be at the clinic until Monday! My hip and shoulder bones ache like they did when I got the shot to boost my bone marrow and I asked today if that meant that my donor was kicking in and they said that is possible. On day 30 after transplant I have to have a bone marrow biospy. So that has been scheduled for this coming Wednesday.
Please pray for the other people there in the clinic. It saddens me and kind of makes me feel guilty that I feel so well and then I see many others looking so sick. Curled up in the chair covered with a blanket. It breaks my heart.
Rodney got here tonight and it was good to see him again. The weather is suppose to be beautiful and I hope that we can find a park to walk.
Well, I had a good big day and I am ready for bed.
Thanks for continued prayers. Miss everyone.
Love,
Gloria
First I want to praise God -He is so awesome. I went to the clinic today and got a small IV of magnesium. The chest x-ray turned out to be normal and then I got some really good news that I don't have to be at the clinic until Monday! My hip and shoulder bones ache like they did when I got the shot to boost my bone marrow and I asked today if that meant that my donor was kicking in and they said that is possible. On day 30 after transplant I have to have a bone marrow biospy. So that has been scheduled for this coming Wednesday.
Please pray for the other people there in the clinic. It saddens me and kind of makes me feel guilty that I feel so well and then I see many others looking so sick. Curled up in the chair covered with a blanket. It breaks my heart.
Rodney got here tonight and it was good to see him again. The weather is suppose to be beautiful and I hope that we can find a park to walk.
Well, I had a good big day and I am ready for bed.
Thanks for continued prayers. Miss everyone.
Love,
Gloria
Thursday, October 9, 2008
day 27 after transplant
Again good evening to all,
What a wonderful day God has blessed me with. I went to bed last night at 10 and read until 11 and then I didn't wake up until 8:15 this morning. I could have stayed in bed longer but I needed to get up to take my 8 am meds. It was nice that I didn't have to go to the clinic today. Today was a day for laundry and cleaning. While the vacuuming was being done I went to the gym and rode the bike.
Pam set a goal for me today to drink 100 oz of fluid today. After lunch we decided that we would find another mall to go to. We went to a very nice mall called the Chesterfield Mall. As we went in I told Pam that the first thing I had to do was find a restroom. We followed the signs and I think that we walked in circles and when we finally had the restroom in sight, there was a sign saying "CLOSED FOR CLEANING"! Pam thought that she was going to buy me a rain coat to bring me home but thank goodness they were just finishing up and taking the sign down. That was good because I would have had to go in anyway. We walked most of the mall and then we headed back to the hotel.
I go to clinic tomorrow at 11 and I hope that it will be a short one. Rodney and Denny will be here tomorrow and Pam will go back home. It has been a real hoot and am looking forward to having Holly here next week. I sure do appreciate all who have signed up and look forward to each and everyone of you staying with me.
More tomorrow,
Love, Gloria
What a wonderful day God has blessed me with. I went to bed last night at 10 and read until 11 and then I didn't wake up until 8:15 this morning. I could have stayed in bed longer but I needed to get up to take my 8 am meds. It was nice that I didn't have to go to the clinic today. Today was a day for laundry and cleaning. While the vacuuming was being done I went to the gym and rode the bike.Pam set a goal for me today to drink 100 oz of fluid today. After lunch we decided that we would find another mall to go to. We went to a very nice mall called the Chesterfield Mall. As we went in I told Pam that the first thing I had to do was find a restroom. We followed the signs and I think that we walked in circles and when we finally had the restroom in sight, there was a sign saying "CLOSED FOR CLEANING"! Pam thought that she was going to buy me a rain coat to bring me home but thank goodness they were just finishing up and taking the sign down. That was good because I would have had to go in anyway. We walked most of the mall and then we headed back to the hotel.
I go to clinic tomorrow at 11 and I hope that it will be a short one. Rodney and Denny will be here tomorrow and Pam will go back home. It has been a real hoot and am looking forward to having Holly here next week. I sure do appreciate all who have signed up and look forward to each and everyone of you staying with me.
More tomorrow,
Love, Gloria
Wednesday, October 8, 2008
day 26 after transplant
Good evening to all,
First let me say how overwhelmed I am with all the cards and emails that I get everyday. I wish I could respond to them all but it would take me forever. I think the front desk has given up calling the room to let me know that I have mail. They just have it ready for Pam when she walks by the desk.
Today started a little slow. Didn't have to be at clinic until 10. There is a certain isolation room that they have been putting me in that the nurses know I like. It is quiet and Pam can stay there with me. Today as I got all setttled a nurse came in and said that I had to go to another room with another lady. Well, this lady was very sick and coughing and did not have mask on. I kept my mask on and felt very uncomfortable there. Most of the time she was curled up in her chair with a blanket over head. I will have to stick up for myself next time and insist on a private room.
I had a visitor when I got back to the hotel. Rodney had a meeting today here in Richmond and he stayed to eat dinner with us. Good to see his smiling face.
I am going to stay up until 8 tonight to take my meds and then I am going to call it a night.
I get to sleep in tomorrow because I don't have to go to clinic.
God Bless,
Gloria
First let me say how overwhelmed I am with all the cards and emails that I get everyday. I wish I could respond to them all but it would take me forever. I think the front desk has given up calling the room to let me know that I have mail. They just have it ready for Pam when she walks by the desk.
Today started a little slow. Didn't have to be at clinic until 10. There is a certain isolation room that they have been putting me in that the nurses know I like. It is quiet and Pam can stay there with me. Today as I got all setttled a nurse came in and said that I had to go to another room with another lady. Well, this lady was very sick and coughing and did not have mask on. I kept my mask on and felt very uncomfortable there. Most of the time she was curled up in her chair with a blanket over head. I will have to stick up for myself next time and insist on a private room.
I had a visitor when I got back to the hotel. Rodney had a meeting today here in Richmond and he stayed to eat dinner with us. Good to see his smiling face.
I am going to stay up until 8 tonight to take my meds and then I am going to call it a night.
I get to sleep in tomorrow because I don't have to go to clinic.
God Bless,
Gloria
Tuesday, October 7, 2008
day 25 after transplant
Good evening to all!
I can't believe that is already 25 days after transplant. We didn't have to go to clinic today so it was good to sleep in and not have to rush to clinic.
Pam did laundry and then we went to Food Lion and to get some bananas and some things for dinner. Came back and finished the laundry and made the beds. Ate lunch and then decided we needed to get out to get some exercise. We drove to a new mall called Stoney Point and walked the entire mall. The weather was beautiful.
Came back to the hotel and showerd and rested until 7 and Pam had dinner ready for me.
It was a good day and I thank God for every good day and for all the support from everyone back home. I miss you guys.
Funny story before I sign off for tonight. Pam thought that the bathroom sink was a little stopped up so she called the maintenance man to see if he would take a look at it (we thought that a little Draino would take care of it). He looked and said that maybe some hair was slowing it up and Pam said, "I don't think that could be the case, I only have 5 hairs and she doesn't have any!! We laughed so hard we almost peed our pants.
Miss you,
Gloria
I can't believe that is already 25 days after transplant. We didn't have to go to clinic today so it was good to sleep in and not have to rush to clinic.
Pam did laundry and then we went to Food Lion and to get some bananas and some things for dinner. Came back and finished the laundry and made the beds. Ate lunch and then decided we needed to get out to get some exercise. We drove to a new mall called Stoney Point and walked the entire mall. The weather was beautiful.
Came back to the hotel and showerd and rested until 7 and Pam had dinner ready for me.
It was a good day and I thank God for every good day and for all the support from everyone back home. I miss you guys.
Funny story before I sign off for tonight. Pam thought that the bathroom sink was a little stopped up so she called the maintenance man to see if he would take a look at it (we thought that a little Draino would take care of it). He looked and said that maybe some hair was slowing it up and Pam said, "I don't think that could be the case, I only have 5 hairs and she doesn't have any!! We laughed so hard we almost peed our pants.
Miss you,
Gloria
Monday, October 6, 2008
day 24 after transplant
Good evening !
First let me say what an awesome God we have. I have had a wonderful day. I didn't have to be at the clinic today until 11:45 so we got to sleep in and that was good because I was so tired from the day before. Nice to be able to chill for a while. I had labs done and a small IV of saline. The nurse pract. checked me over and said that I was doing very well. I had to do another culture for this virus and had a chest x-ray. I do not have to go the clinic tomorrow so that will be good to have another day off. Pam and I will have to find some place to go and walk around.
Had to go to the drugstore and get another prescription and then we came back to the hotel and I laid down for a while and then we walked the full length of the hotel hall for some excerise.
Pam fixed me a fish filet, baked potato and beets for dinner -- it was really good. Now she just brought me a hot cup of tea and fruit with pound cake. I think that I am getting very spoiled.
Miss all of you guys and think about you alot but the time here is going by so much faster than I ever thought that it would. I have had some time to read and that is something that I enjoy doing and don't get a lot of time to do.
God Bless,
Gloria
First let me say what an awesome God we have. I have had a wonderful day. I didn't have to be at the clinic today until 11:45 so we got to sleep in and that was good because I was so tired from the day before. Nice to be able to chill for a while. I had labs done and a small IV of saline. The nurse pract. checked me over and said that I was doing very well. I had to do another culture for this virus and had a chest x-ray. I do not have to go the clinic tomorrow so that will be good to have another day off. Pam and I will have to find some place to go and walk around.
Had to go to the drugstore and get another prescription and then we came back to the hotel and I laid down for a while and then we walked the full length of the hotel hall for some excerise.
Pam fixed me a fish filet, baked potato and beets for dinner -- it was really good. Now she just brought me a hot cup of tea and fruit with pound cake. I think that I am getting very spoiled.
Miss all of you guys and think about you alot but the time here is going by so much faster than I ever thought that it would. I have had some time to read and that is something that I enjoy doing and don't get a lot of time to do.
God Bless,
Gloria
Sunday, October 5, 2008
day 23 after transplant
Good evening to all,
The day started by going to the clinic at 10 and it was a short visit. They are still pleased with my progress. I have to go to the clinic tomorrow at 11:45 and hopefully that will be a short visit also. I still have this virus but hopefully it is on the mend.
Rodney left and now Pam Cox is my caregiver for the week. Rodney sure was a good caregiver and I know that all my other caregivers will be just as good. The suite is now more like home because it is clean just like your house. Just extra things to do to keep safer for me.
Again this is going to be another short blog. It has been a wonderful but exhausting day.
God Bless All
Gloria
The day started by going to the clinic at 10 and it was a short visit. They are still pleased with my progress. I have to go to the clinic tomorrow at 11:45 and hopefully that will be a short visit also. I still have this virus but hopefully it is on the mend.
Rodney left and now Pam Cox is my caregiver for the week. Rodney sure was a good caregiver and I know that all my other caregivers will be just as good. The suite is now more like home because it is clean just like your house. Just extra things to do to keep safer for me.
Again this is going to be another short blog. It has been a wonderful but exhausting day.
God Bless All
Gloria
Saturday, October 4, 2008
day 22 after transplant
Good evening!
One month ago today I was admitted to the hospital and started my chemo to get to ground zero. I am glad that for that step to be over and on to recovery.
I had a good day today because I had a day off from the clinic and my parents came down for a short visit. It was good to see them and I think that they were suprised at how well I am doing.
It was good for them to be here so Rodney and I could show them around the hotel and to show them some of the things that needs to be done to take care of me. Rodney says that if he can do it anyone else can do it. Just wash hands and keep things clean. Rodney does my laundry and bed linens in the laundry room provided by the hotel so it is not put in with the laundry for the entire hotel. Rodney has been wonderful taking care of me and I know that everyone else will be fine also.
This is going to be short because I am going to bed early tonight because I have to be at the clinic tomorrow at 10.
I will miss being in church and seeing all of you but know that I will be there in spirit.
God Bless All,
Gloria
One month ago today I was admitted to the hospital and started my chemo to get to ground zero. I am glad that for that step to be over and on to recovery.
I had a good day today because I had a day off from the clinic and my parents came down for a short visit. It was good to see them and I think that they were suprised at how well I am doing.
It was good for them to be here so Rodney and I could show them around the hotel and to show them some of the things that needs to be done to take care of me. Rodney says that if he can do it anyone else can do it. Just wash hands and keep things clean. Rodney does my laundry and bed linens in the laundry room provided by the hotel so it is not put in with the laundry for the entire hotel. Rodney has been wonderful taking care of me and I know that everyone else will be fine also.
This is going to be short because I am going to bed early tonight because I have to be at the clinic tomorrow at 10.
I will miss being in church and seeing all of you but know that I will be there in spirit.
God Bless All,
Gloria
Friday, October 3, 2008
day 21 after transplant
Good evening to all !
Can you believe that I have been away from Bridgewater for exactly one month today? Time does fly. It is so nice to be in the Candlewood Suites where it is more like home and not the hospital environment.
Another good day at the clinic. It was short and and I was told that I will get another day off. I don't have to go back until Sunday morning. Dr. Chung came in and said that I was doing very well. He said that a lot of patients don't get their first day off from the clinic for at least one month. He has even taken me off of some of my meds. Oh my how God is good. He sure is with me all the step of the way and He has His loving arms wrapped around me. What comfort.
Went to Target and to U-krops today and got some supplies and it was good to get out again in the nice warm weather.
Rodney made me some wonderful pasta tonight for dinner. I sit in a chair and gave him directions and he did a wonderful job. He is really spoiling me.
I will even get some visitors tomorrow -- my parents are coming down for a little while and it will be good to see them.
I has been a wonderful day and I think that I will get ready to call it a night and get ready for another wonderful day tomorrow.
Again I continue to thank each and everyone of you all for all your love, support, cards and prayers. I may not be there in person but I miss all of you very much and can't wait until I get back to Bridgewater. I have learned patience and I shall just take one day at a time. I am getting a lot of reading done and that feels good.
God Bless,
Gloria
Can you believe that I have been away from Bridgewater for exactly one month today? Time does fly. It is so nice to be in the Candlewood Suites where it is more like home and not the hospital environment.
Another good day at the clinic. It was short and and I was told that I will get another day off. I don't have to go back until Sunday morning. Dr. Chung came in and said that I was doing very well. He said that a lot of patients don't get their first day off from the clinic for at least one month. He has even taken me off of some of my meds. Oh my how God is good. He sure is with me all the step of the way and He has His loving arms wrapped around me. What comfort.
Went to Target and to U-krops today and got some supplies and it was good to get out again in the nice warm weather.
Rodney made me some wonderful pasta tonight for dinner. I sit in a chair and gave him directions and he did a wonderful job. He is really spoiling me.
I will even get some visitors tomorrow -- my parents are coming down for a little while and it will be good to see them.
I has been a wonderful day and I think that I will get ready to call it a night and get ready for another wonderful day tomorrow.
Again I continue to thank each and everyone of you all for all your love, support, cards and prayers. I may not be there in person but I miss all of you very much and can't wait until I get back to Bridgewater. I have learned patience and I shall just take one day at a time. I am getting a lot of reading done and that feels good.
God Bless,
Gloria
Thursday, October 2, 2008
day 20 after transplant
Good evening to all!
What a busy but wonderful day I had. Got up at 7:45 and had breakfast. Rodney did laundry and ran the dishwasher -- he is really becoming domesticated! He cleaned the bathroom and kitchen.
At least I got to fold the clean clothes and empty the clean dishes from the dishwasher. I feel helpless.
It was wonderful to have the day off from the clinic so we found a mall to go to. It was a nice day to walk the outside and enjoy the sunshine and fresh air. After we got back to the hotel Rodney had some work to do so I went to bed to rest.
Rodney fixed dinner and now we are relaxing and enjoying each others company.
I have to be at the clinic tomorrow at 10:30 so I won't stay up late tonight. Praying for a good report at the clinic tomorrow. I have been a good girl and I have been drinking, drinking, and drinking. I feel like a fish!
Thanks again to everyone for all your cards, support and especially your prayers.
God is so good to bless me with all of you to be there for support.
Love,
Gloria
What a busy but wonderful day I had. Got up at 7:45 and had breakfast. Rodney did laundry and ran the dishwasher -- he is really becoming domesticated! He cleaned the bathroom and kitchen.
At least I got to fold the clean clothes and empty the clean dishes from the dishwasher. I feel helpless.
It was wonderful to have the day off from the clinic so we found a mall to go to. It was a nice day to walk the outside and enjoy the sunshine and fresh air. After we got back to the hotel Rodney had some work to do so I went to bed to rest.
Rodney fixed dinner and now we are relaxing and enjoying each others company.
I have to be at the clinic tomorrow at 10:30 so I won't stay up late tonight. Praying for a good report at the clinic tomorrow. I have been a good girl and I have been drinking, drinking, and drinking. I feel like a fish!
Thanks again to everyone for all your cards, support and especially your prayers.
God is so good to bless me with all of you to be there for support.
Love,
Gloria
Wednesday, October 1, 2008
day 19 after transplant
Good evening !
Had a very good night's rest and we got up at 7:30 and had breakfast. We didn't have to be at the clinic until 10:30.
Still had to be put in an isolation room and they took labs and gave me a small IV bag of saline solution and then it seemed like a long time until my lab results came back. It was good news. I didn't need anything else. As a matter of fact I get a day off tomorrow -- no clinic for me tomorrow! Praise the Lord ! I have to go back on Friday and also to see a doctor.
On our way back to the hotel we found a Food Lion and I even got to go in as long as I didn't touch anything. That was kind of hard to do but it was ok. They said that if I felt that it was not safe to leave. I stayed out of the produce dept. and away from the flower dept.
Came back to the hotel and ate dinner and then went to lay down for a while and the next thing I know Rodney came in to wake me up at 8 to take my pills.
I got mail today and that a nice surprise.
The people here at the hotel could not be more helpful. Tonight they had a cookout with hamburgers and hot dogs out on the grill. That is where Rodney got his dinner.
Tomorrow is a day to relax and maybe explore the area for a mall. As long as it is a time when the mall is not crowded they said that would be a good place to walk.
Thanks so much for your continued support and all your prayers -- they sure do work.
God Bless,
Gloria
Had a very good night's rest and we got up at 7:30 and had breakfast. We didn't have to be at the clinic until 10:30.
Still had to be put in an isolation room and they took labs and gave me a small IV bag of saline solution and then it seemed like a long time until my lab results came back. It was good news. I didn't need anything else. As a matter of fact I get a day off tomorrow -- no clinic for me tomorrow! Praise the Lord ! I have to go back on Friday and also to see a doctor.
On our way back to the hotel we found a Food Lion and I even got to go in as long as I didn't touch anything. That was kind of hard to do but it was ok. They said that if I felt that it was not safe to leave. I stayed out of the produce dept. and away from the flower dept.
Came back to the hotel and ate dinner and then went to lay down for a while and the next thing I know Rodney came in to wake me up at 8 to take my pills.
I got mail today and that a nice surprise.
The people here at the hotel could not be more helpful. Tonight they had a cookout with hamburgers and hot dogs out on the grill. That is where Rodney got his dinner.
Tomorrow is a day to relax and maybe explore the area for a mall. As long as it is a time when the mall is not crowded they said that would be a good place to walk.
Thanks so much for your continued support and all your prayers -- they sure do work.
God Bless,
Gloria
day 18 after transplant
Good morning !
We had a bad lightning storm here last night and could not get connected to the internet and I fell asleep while waiting for the storm to be over.
I had a good and busy day yesterday. When to clinic and it was not as long as the first day because I have been drinking more the IV bag of saline was 1/2 as big. Labs were fine but the influenza culture is still postive so I am still put in isolation. I feel that it is getting better but just annoying cough.
After clinic it was such a beautiful day that I did more walking outside with mask and walked the hall of the hotel to find out where the gym is and picked out a couple of pieces of equipment that I could use when there is no one else in there.
Then layed down to rest and slept 3 hours. Pam woke me up and said that Rodney and Denny would be here soon. Ate dinner and in they arrived. It was good to see their faces.
One funny story before I close -- I woke up at 3 am and had to go to the bathroom and I panicked because I couldn't find my IV pole or the outlet to unplug it. I was looking all around and then I came to my senses and remembered that I was not in the hospital and was not even connected to the IV pole anymore!
Rodney is trying to fix my breakfast and then it is off to the clinic.
Will write more tonight.
God Bless All,
Gloria
We had a bad lightning storm here last night and could not get connected to the internet and I fell asleep while waiting for the storm to be over.
I had a good and busy day yesterday. When to clinic and it was not as long as the first day because I have been drinking more the IV bag of saline was 1/2 as big. Labs were fine but the influenza culture is still postive so I am still put in isolation. I feel that it is getting better but just annoying cough.
After clinic it was such a beautiful day that I did more walking outside with mask and walked the hall of the hotel to find out where the gym is and picked out a couple of pieces of equipment that I could use when there is no one else in there.
Then layed down to rest and slept 3 hours. Pam woke me up and said that Rodney and Denny would be here soon. Ate dinner and in they arrived. It was good to see their faces.
One funny story before I close -- I woke up at 3 am and had to go to the bathroom and I panicked because I couldn't find my IV pole or the outlet to unplug it. I was looking all around and then I came to my senses and remembered that I was not in the hospital and was not even connected to the IV pole anymore!
Rodney is trying to fix my breakfast and then it is off to the clinic.
Will write more tonight.
God Bless All,
Gloria
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